She took her pacifier out of her mouth and put it back into her mouth — more than once today!!! That’s my girl!!! (I’m so proud)
Posts Tagged ‘baby development’
Milestone!
Posted in Living Life, tagged baby development, milestone on December 19, 2008| 1 Comment »
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To be notified of updates to this blog via email, click here.Meet Little Miss Hannah
Hannah was born on July 25, 2008. She was 6 pounds 11 ounces and 19 inches long. Two days after birth, it was found she had an enlarged spleen and extremely low thrombocytopenia. Eventually her liver became involved, and she developed slight anemia.
Now we are trying to find out what is going on. However, with all of her internal and blood-related symptoms, she is acting and has always acted like a happy and healthy child. She eats well, has gained weight as she should, is developing on track, etc. We are thrilled that she acts so healthy! The only symptom that we see affecting her is that she has a bit of difficulty breathing, especially when she gets active or is eating.
We are now working with a team of doctors including a hematologist, hepatologist, opthamologist, otolaryngologist, early intervention, and a genetics specialist to try and figure out what is going on.
(Click "Hannah's Story" underneath for more background)Blog visitors
- 4,724 visits since Nov 2008
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Upcoming
01/07 ? - Pediatrician
01/26 - Otolaryngologist
pending biopsy results- Genetics specialist meeting
Pending
* Fibroblast culture maturation (from skin biopsy) - around mid December
* Gaucher's and Neimann Pick C testing - 2 to 3 weeks after fibroblast is ready
* Immunizations (we finally got the go ahead from the genetics doctor to get started!)Categories
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