• Home
  • Hannah’s Story

Little Miss Hannah

In search of a diagnosis for our little girl…

Feeds:
Posts
Comments

Hannah’s blog has a new home

December 27, 2008 by Overloaded Mama

You can find future updates at http://www.littlemisshannah.com. If you have us on your blogroll or links list, please update our information.

Posted in Living Life | No Comments Yet

  • Email Notifications

    To be notified of updates to this blog via email, click here.
  • Meet Little Miss Hannah

    Hannah was born on July 25, 2008. She was 6 pounds 11 ounces and 19 inches long. Two days after birth, it was found she had an enlarged spleen and extremely low thrombocytopenia. Eventually her liver became involved, and she developed slight anemia.

    Now we are trying to find out what is going on. However, with all of her internal and blood-related symptoms, she is acting and has always acted like a happy and healthy child. She eats well, has gained weight as she should, is developing on track, etc. We are thrilled that she acts so healthy! The only symptom that we see affecting her is that she has a bit of difficulty breathing, especially when she gets active or is eating.

    We are now working with a team of doctors including a hematologist, hepatologist, opthamologist, otolaryngologist, early intervention, and a genetics specialist to try and figure out what is going on.



    (Click "Hannah's Story" underneath for more background)
  • Blog visitors

    • 3,585 visits since Nov 2008
  • Pages

    • Hannah’s Story
  • Upcoming

    01/07 ? - Pediatrician
    01/26 - Otolaryngologist
    pending biopsy results- Genetics specialist meeting

    Pending
    * Fibroblast culture maturation (from skin biopsy) - around mid December
    * Gaucher's and Neimann Pick C testing - 2 to 3 weeks after fibroblast is ready
    * Immunizations (we finally got the go ahead from the genetics doctor to get started!)
  • Categories

    • Big Bro and Big Sis
    • Living Life
    • Medical Stuff
      • Diagoses
        • Gaucher's Disease
        • Neimann Pick Disease
        • Neonatal alloimmune thrombocytopenia
      • Early Intervention
      • Procedures
    • Project Hannah
  • Recent Comments

    • Karen on Unconditional and Pure Love
    • Mel on Unconditional and Pure Love
    • Heather on Unconditional and Pure Love
    • Tracy on Little freak-out
    • Mel on Little freak-out
  • Archives

    • December 2008
    • November 2008
    • September 2008
    • August 2008
    • July 2008
  • Other Blogs to Read





    Add to Technorati Favorites

    Parenting Blogs - Blog Top Sites

    Directory of Children Blogs

    Mommy Blogs - BlogCatalog Blog Directory

Blog at WordPress.com.

Theme: Mistylook by Sadish.